He sure is goofy, this is his turkey face with licorice hanging off of his nose. Here he is holding his baby sister for the very first time. He absolutely loves both of his sisters and has formed a very special relationship with McKadie, especially considering how badly he wanted a brother. There is another picture in here where he is asleep on the floor of the hospital. He was so tired from waiting all day for her to come that he sat on the floor waiting his turn to hold her and he collapsed. He was originallysitting up with his head on his hand on his knee, the arm eventually fell to the floor for support of his noggin.
There are so many pictures here. I try to capture all sides of him. He loves his aunt Tasha and his Uncle Scooby aka Colton or CoCo. He loves his daddy so much. He wants to be just like him and I love it. They even have their own song by Rodney Adkins "Watching You" and every time it comes on the radio they tell everyone to shhh and they sing it together. He knows it word for word. He loves both of his sisters so much and is so good to them.
He loves Spiderman, Scooby Doo, and pretty much anything super heros. He is a big fan of Star Wars and has been for many years. He will hum the march for Darth Vader and tell you that is his favorite song other than the song for him and daddy.
He is a big Momma's Boy and I love it. He is proud of it too. He is such a gentleman to me. He helps me out when I am sick. He holds the door for me and at times has argued with me because I have told him to go first and he says no mom ladies are supposed to go first and you are the BEST lady so you have to go first. He says cute things like that all of the time.
So to finish the story of my little man. We meet with the Muscular Neurologist at Primary Children's Hospital today. He does not have Muscular Dystrophy. Thank you Heavenly Father. However he does have a Metabolic Myopathy of some sort. There are several different kinds and now he is undergoing more tests to determine which one it might be. Well while we are in the dr's office and I am being asked all of these questions about Hunter I keep thinking that McKadie applies to a lot of what she is telling me. So not only did I go away from Hunter's apt. today knowing that my son will have to deal with this muscle disease his entire life, but now my daughter will too. No blood work has been done on her yet but the dr. seems confident that whatever the outcome for Hunter is will most likely be the outcome for McKadie.
And yet another challenge in this life we have to bear. But Brian and I are optimistic. It's not Muscular Dystrophy. I don't think this will be lethal, it will just limit his and her physical activity, which it already does. We WILL get through this. We WILL survive this. We WILL have faith that there is a greater plan for us that we are not aware of. I strongly believe that Heavenly Father will never give us a challenge or trial we are not able to bear.
Hunter, I love you. I am so happy that you were sent to our family. You make us smile and laugh. You are such a ray of sunshine and I can't imagine this earthly life without you here. I love you lots and lots and lots and lots!!!
2 comments:
I LOVE YOU BUDDY! keep smiling. i love your smile.
I love you bunters!!! Your the sweetest ever. Love aunt tasha
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